Along the way we’ve found useful information and resources that we hope might be useful to you too. On this page we share with you anything that might be helpful that we’ve not already talked about.
The International Institute for Hip Dysplasia is the global leader in educational, research, and technological initiatives aimed at prevention, early diagnosis, and innovative treatment options to minimize the long-term impacts of hip dysplasia. They have a helpful website which offers clear information about hip dysplasia.
Miles4hips is a patient-driven, collaborative initiative between individuals affected by hip dysplasia and the International Hip Dysplasia Institute (IHDI). This website includes contributions from all over the world (including some Get CreActive hippies)
The group was created by Natalie Trice, the founder of DDH UK and author of Cast Life: A Parent’s Guide to DDH. The group is made up of people of all ages from around the UK. Some members have DDH themselves, some have children with DDH (or both) and some group members are friends or family of someone with DDH who, like all of us, are looking for information and support. No-one in the group gives medical advice or provides any kind of diagnoses or treatment recommendations. The group is a great private space to ask questions, share experiences, let off steam, as well as give support to others and feel supported yourself.
A group specifically for people based in the UK who have been diagnosed with hip dysplasia and are undergoing, or have previously undergone PAO surgery. Again, no-one in the group gives medical advice or provides any kind of diagnoses or treatment recommendations. It is a private space to talk about experiences, share hints and tips, as well as the highs and lows of the lengthy process that is involved in the diagnosis and treatment of DDH with the aim to become ‘hip healthy’.
There are two UK based charities which support people with hip dysplasia.
You may find however that the information and materials provided by these charities focus more on children than adults.
If you are interested in reading research about hip dysplasia, you may find the below research articles of interest.
These articles however have been written for the clinical and scientific community and aren’t aimed at patients and the public
British Hip Society (2018) Non-Arthroplasty Hip Register. Retrieved from: www.nahr.co.uk
West, S., & Witt, J. (2011) Bilateral Developmental Dysplasia of the Hips, British Medical Journal. 342 Doi: http://dx.doi.org/10.1136/bmj.d2152
Gala, L., Clohisy, J. C. & Beaule, P. E. (2016) Hip Dysplasia in the Young Adult. The Journal of Bone & Joint Surgery, 98-A (1)
Royal College of Surgeons (RCS) (2017) Commissioning guide: pain arising from the hip in adults. London: British Hip Society, British Orthopaedic Association and Royal College of Surgeons of England
Kappe, T., Kocak, T., Reichel, H. & Fraitzl, C. R. (2012) Can femoroacetabular impingement and hip dysplasia be distinguished by clinical presentation and patient history? Knee Surgery, Sports Traumatology, Arthroscopy, 20. 387-392
(the link is in another language but accessible in English when you click on it)
Klaue, K., Durnin, C. W. & Ganz, R. (1991) The Acetabular Rim Syndrome: A Clinical Presentation of Dysplasia of the Hip. The Journal of Bone & Joint Surgery, 73-B (3). 423-429 (old but a key paper by Ganz)
Available for free here
Pun, S. (2016) Hip Dysplasia in the young adult caused by residual childhood and adolescent-onset dysplasia. Current Reviews in Musculoskeletal Medicine, 9 (4).
Wyles, C. C., Heidenreich, M. J., Jeng, J., Larson, D. R., Trousdale, R. T. & Sierra, R. J. (2017) The John Charnley Award: Redefining the Natural History of Osteoarthritis in Patients with Hip Dysplasia & Impingement. Clinical Orthopaedics & Related Research, 475. 336 – 350
Vail, T. P. (2017) CORR Insights: The John Charnley Award: Redefining the Natural History of Osteoarthritis in Patients With Hip Dysplasia and Impingement. Clinical Orthopaedics & Related Research, 475. 351-352
Jorgensen, R. W., Dippmann, C., Dahl, L. & Sturup, J. (2016) Treatment Algorithm for Patients with Non-arthritic Hip Pain, Suspect for an Intraarticular Pathology. The Open Orthopaedics Journal, 10. 404-411.
International Hip Dysplasia Institute Position statement on Arthroscopy with Labral Debridement for Hip Dysplasia https://hipdysplasia.org/for-physicians/hip-arthroscopy-for-labral-repair-in-patients-with-hip-dysplasia/
Evans, P. T., Redmond, J. M., Hammarstedt, J. E., Liu, Y., Chaharbakhshi, E. O. & Domb, B. G. (2017) Arthroscopic Treatment of Hip Pain in Adolescent Patients With Borderline Dysplasia of the Hip: Minimum 2-Year Follow-Up. The Journal of Arthroscopic and Related Surgery, 33 (8). 1530-1536.
The International Hip Dysplasia Institute (2016) Hip Preservation Surgery for Adult Hip Dysplasia. Retrieved from http://hipdysplasia.org/adult-hip-dysplasia/adult-treatments/hip-preservation-surgery-for-adult-hip-dysplasia/
Clohisy, J. C., Akerman, J., Baca, G., Baty, J., Beaule, P. E., Kim, Y-J., Millis, M. B., Podeszwa, D. A., Schoenecker, P. L., Sierra, R. J., Sink, E. L., Sucato, D. J., Trousdale, R. T. & Zaltz, I. (2017) Patient-Reported Outcomes of Periacetabular Osteotomy from the Prospective ANCHOR Cohort Study. Journal of Bone & Joint Surgery, 99 (1). 33 – 41. Doi: 10.2106/JBJS.15.00798
Lerch, T. D., Steppacher, S. D., Liechti, E. F., Tannast, M & Siebenrock, K. A. (2017) One-third of hips after Peri-acetabular Osteotomy Survive 30 Years with Good Clinical Results, No Progression of Arthritis, or Conversion to THA. Clinical Orthopaedics & Related Research, 475 (4). 1154-1168.
Mei-Dan, O., Jewell, D., Garabekyan, T., Brockwell, J., Young, D. A., McBryde, C. W. & O'Hara, J. N. (2017) The Birmingham Interlocking Pelvic Osteotomy for Acetabular Dysplasia: 13-to-21-Year Survival Outcomes. The Bone & Joint Journal, 99-B (6). 724 - 731.
Novais, E. N., Carry, P. M., Kestel, L. A., Ketterman, B., Brusalis, C. M. & Sankar, W. N. (2017) Does Surgeon Experience Impact the Risk of Complications After Bernese Periacetabular Osteotomy? Clinical Orthopaedics & Related Research. 475 (4). 1110 – 1117. Doi: 10.1007/s11999-016-5010-1
Kralj-Iglic, V. (2017) CORR Insights: Does Surgeon Experience Impact the Risk of Complications After Bernese Periacetabular Osteotomy? Clinical Orthopaedics and Related Research, 475. 1118-1119
